'I Was Terrified' – Birmingham Dad Shares Son’s Journey with Rare Dravet Syndrome Diagnosis Sunday, June 14, 2026 dravet epilepsy genetic diagnosis rare disease seizures birmingham awareness advocacy When Birmingham father James Thompson received the news that his young son, Oliver, had been diagnosed with Dravet Syndrome, his world was turned upside down. “I was absolutely terrified,” James recalls. Dravet Syndrome is an … Read More
'Heartbroken' Mum Discovers Baby Has Inherited Rare 'Butterfly Skin' Condition Saturday, June 6, 2026 epidermolysis bullosa genetic butterfly skin rare condition blistering disability support Jennifer Taylor, a 34-year-old mother from Prescot, Merseyside, has lived her life with dystrophic epidermolysis bullosa (DEB), a rare genetic condition often described as ‘butterfly skin’ due to the extreme … Read More