'I Was Terrified' – Birmingham Dad Shares Son’s Journey with Rare Dravet Syndrome Diagnosis Sunday, June 14, 2026 dravet epilepsy genetic diagnosis rare disease seizures birmingham awareness advocacy When Birmingham father James Thompson received the news that his young son, Oliver, had been diagnosed with Dravet Syndrome, his world was turned upside down. “I was absolutely terrified,” James recalls. Dravet Syndrome is an … Read More
Solihull Mum Honours 'Selfless' Carer Supporting Son with Rare Dravet Syndrome Sunday, November 23, 2025 solihull dravet epilepsy care support disability resilience charity health community A Solihull mother has expressed deep gratitude for a devoted support worker who has been an indispensable part of her family for over ten years. Meggie Feeney’s sons, Mason, 14, and Jake, 24, both live with Dravet Syndrome, a … Read More