Brothers Jordan and Cian Adams from Redditch face a daunting reality: both carry a rare genetic mutation that gives them a 99.9% likelihood of developing familial frontotemporal dementia (FTD). This devastating hereditary condition has already claimed the life of their mother and 12 other family members.
Determined to make a difference, the brothers have raised over £500,000 to support research, awareness, and families affected by FTD. Their courageous efforts are shining a light on a disease that remains little understood by the public and medical community alike.
The Adams brothers hope their fundraising will accelerate scientific breakthroughs and provide hope to others living under the shadow of this aggressive form of dementia. Their story is a powerful testament to resilience, family, and the urgent need for advancements in dementia research.